History of Project HIEDI

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Jump to Implementation of national hearing screening programme - 2007

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What is Project HIEDI?

In 2001, the NFD decided that advocating for a national programme to screen newborns’ hearing would be our top priority.

To that end, we  support ‘Project HIEDI’. HIEDI stands for Hearing Impairment - Early Detection and Intervention.

Our goal was to have all New Zealand babies screened for hearing impairment at birth. That way, any babies with hearing impairment would be:

  • diagnosed quickly and accurately
  • given speedy access to the right sort of help.

Reaching these babies early means they have a much greater chance of reaching their full potential in life.

Project HIEDI develops evidence of need

During the initial advocacy phase, the Project HIEDI Steering Team produced two key documents. These outlined the evidence for establishing a universal hearing screening and early intervention programme for newborns in New Zealand.

The evidence-based case is primarily an academic document written for the government. HIEDI also produced a summary booklet for much wider distribution.

HIEDI_Evidence_Based_Case
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HIEDI_Summary_Booklet
Click here to download the document.
Last updated on: 7 Sep 2009 || File size: 92 Kb - Approx 13.11 secs to download at 56k. Acrobat Reader required - download here.

National Newborn Screening Advisory Group reports to Minister - 2005

Project HIEDI team members participated in the National Newborn Screening Advisory Group in 2005. This group was charged with

  • making a recommendation to the Minister of Health on whether to set up a screening programme
  • identifying important characteristics of a potential programme.

Read the report of this group on the Ministry of Health website.

Universal Newborn Hearing Screening Programme announced - May 2006

In May 2006, we all celebrated success.

The government announced that it would fund a newborn hearing screening programme for all New Zealand children, starting in 2007.

Implementation of national hearing screening programme - 2007

The programme roll-out began on 1 July 2007. It started in three district health boards with existing programmes: Waikato, Tairawhiti and Hawkes Bay. The screening programme should be available in all areas by 2009, with the government committing $16 million over 4 years.

The Ministry of Health (National Screening Unit) and Ministry of Education (Group Special Education) are working together to implement the national programme.

Project HIEDI team members are still involved during this implementation phase. These days, the focus is on quality and effectiveness of the programme. So we’re participating in two advisory groups set up by the ministries.  The two advisory groups are:

1.  Ministry of Health - Implementation Advisory Group

This group’s role is to advise the ministries on all aspects of implementing the national hearing screening programme.

This group includes representatives from groups such as:

  • National Screening Unit
  • Group Special Education
  • Project HIEDI
  • Audiology services
  • Midwifery
  • Existing screening programmes
  • Paediatrics
  • Ear, nose & throat (ENT) surgery
  • Parents of children with hearing loss
2.  Ministry of Education – Group Special Education Reference Group

This group’s role is to make broad recommendations about:

  • the early intervention aspects of the national programme
  • how education services will link with diagnostic services.

This group includes representatives from Project HIEDI and many other interested organizations.

More information

If you’d like more information about Project HIEDI’s work, or to receive regular email newsletters, contact Janet Digby.

Janet Digby
Project Manager - Project HIEDI

Email: janet@levare.co.nz

Phone: 021 653 827

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